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Advocacy

We work directly on:

Fighting for access to all medications
Access to comprehensive care
Out-of-pocket cost
Implementation of the Federal Basic Health Plan
Funding for bleeding disorder research
Understanding of bleeding disorders
Education of the financial burden to families

Here’s how we do it:

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Advocacy in action

In action video: Stephanie Simpson: 1.18.2019 advocating on emerging therapies (at 52.50)

This could be you! See below to find out how.

*Some of our advocacy based successes:

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Sign up for chronic conditions advocacy training with the BDFW!

In the message please include your advocacy experience,

what days of the week are good for you,

morning, afternoon, or evening,

chronic condition you will represent or what organization you are from

and your county/zipcode so we can coordinate groups for training!

Name *
Name
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