Welcome to Our Community
We are a volunteer-based, non-profit dedicated to improving the quality of life of individuals and families affected by bleeding disorders by providing caring support, quality education and targeted advocacy aimed at enhancing medical care and insurance coverage for our community.
2009 Annual Meeting: Education, Information, Friends, and Fun!
The BDFW is pleased to announce our 2009 annual meeting on November 7, 2009, at the Embassy Suites Hotel located at 15920 West Valley Highway, Seattle, Washington 98188.
Registration and continental breakfast begin at 8:30 a.m. The program begins at 9:00 a.m.
Enjoy a wide variety of industry vendor booths and information, a buffet lunch and guest speakers who will address the latest developments in health care policy reform, the financial impacts of bleeding disorders, and joint health and exercise. Speakers will begin at 10:00 a.m., lunch will be served at 1:00 p.m., followed by the board's annual meeting and membership voting.
Children are encouraged to attend. We'll be providing fun and educational classes for kids ages 4-6, 7-10 and for teens 11-17. Daycare will be provided for younger kids. Kids will also enjoy games, make and race your own race car, and balloon twisting.
Following fresh baked cookies at 2:15, all will be treated to an amazing performance by Curtis Carlyle and Seriously Funny Juggling.
A Spanish speaking tract will also be offered this year, offering the latest information, networking and answers to questions for our Spanish speaking only families.
The BDFW has also set aside several rooms guests can book at a discounted group rate of $99. Please call the Embassy Suites at 425-227-8844 to book your room today.
Please RSVP by November 1, 2009, including the age and number of all children attending, at 206-533-1660 or info@bdfwa.org
We hope to see all of you there!
URGENT ACTION NEEDED ON HEALTHCARE REFORM
As you know, the debate about health care continues, with Congress expected to vote on some version of reform soon.
The BDFW is urging our community to contact their federally elected officials to ask them to pass real reform that will cover all Americans, cut health care costs, eliminate pre-existing condition requirements, abolish benefit caps and ensure long-term and end-of-life care.
Click here to view a letter from the BDFW to our community along with instructions on how to contact your elected officials. Additionally, we've provided talking points to help you when making your phone calls and to use as a guide when writing your letters and e-mails. Please share your personal stories and experiences. Your help and action is needed now more than ever.
If you have any questions or if you need any help contacting your elected officials, please contact our office at 206-533-1660.
Sincerely,
Kristian Prill
Executive Director
In the News
Camp I-VY Kids Help Local Food BankGreat job to all our Camp I-VY families who raised money and food donations for the Sultan Food Bank. Times are hard for so many, and your generosity and support really help to make a difference. Let's keep up the good work!
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On February 3rd, the BDFW will offer the first New Parent support group of 2010 for parents of young children with a bleeding disorder under five year olds. Dr. Dana Matthews, physician of hematology/oncology in pediatrics at Seattle Childrens will be joining us to answer concerns and questions you have. Heidi Forrester will lend the parent perceptive of having two children, one with severe hemophilia and what has been her saving grace dealing with this illness. Also on hand to share his own personal story will be 17-year-old Nicholas Martin, who has severe hemophilia A.
We know how beneficial it is to learn first-hand what your child will experience from someone who has been living with this diagnosis and has experienced the limitations that go along with it and to hear what a wonderful life he has been living. It is a night you wont want to miss! For more information please call 206-533-1660 or email info@bdfwa.org.
A special thanks to mom and advocate, Heidi Forrester, for her help with the event.
Please look for additional parent support group meetings throughout the state in 2010.



































